I had terrible reflux until I switched my diet. Totally. no alcohol. (alas..although perhaps on a holiday!) no sugar no white flour .. (I know, ugh) lots of greens smoothies and veggies. and no reflux. No fun but definitely worth it and now have lost 13 of the 15 lbs gained on prednisone which IS fun!
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It is very terrifying. Very. All I can advise your son is try to avoid the ‘Crohn’s Trifecta’ – Stress, Alcohol, Spicy Food or Smoking. A combination of any of these three, at least for me, will lead to a flare up. Also I know he will be in college and the money will be tight and he will start eating lots of pizza and junk food. As a good parents prep him some home cooked healthy food for him – oil foods will agitate Crohn’s and make flare up much more likely.
Also sleeping habits – I have learned that if I sleep after 3am continuously for a few months – my Crohn’s flare up – no matter how well I eat and exercise. Your GI tract is repaired from 1am – 5am; It’s written in journals and science – so the more all-nighters he pulls – the more likely a flare up will happen.
I know you want to give him freedom to make his choices and face the possible consequences, but trust me, he has to understand the consequences can be detrimental. I am talking about fistulas, colonectomy, poop bag, life-time of expensive medication, and hospital debt – I have friends who ignored their Crohn’s triggers and wanted to ‘Enjoy life’ and now they are my age, 26-30, and had colonectomy, fistulas, and a poop bag, and expensive medication and $70k in debt, and can’t hold a good paying job even though he is an engineer. The consequences – financial, emotional, and social repercussions are not worth that little bit of freedom.
My disease has been largely in remission since 2013. But it takes lots of discipline – exercise, diet, minimal drinking, no smoking, minimal spicy food, etc.
The medication that I used was just prednisone – the moment I have a flare up – I get prednisone and sometimes sulfasalazine together, but during those 1 month of medication – I go into my anti-inflammatory, low food residue, low fat, low fiber diet: Rice, chicken/ pork, bananas, apples (no skin), broccoli (no stem), apple pectin, some fish, pasta, potatoes, and probiotics. I also regulate my sleep schedule back to 10-11pm. and exercise 30- 35 minutes a day. I will take multi vitamin, calcium, folic acid, apple pectin, and vit. B complex.
If you son is in remission – then I would say keep doing what he is doing. But if he is not – I would go with medication that is the least harmful and least expensive first. I am assuming your doctor wants your son to use Remicade or humira, biologics? Those work, but they are expensive, $2000-3000/ dose (granted there is insurance for that reason), but once you are on it, you will be on it for the rest of your life. I would prefer to give the body a chance to learn to heal and cope, rather than medication for life.
I would if he is in remission right now – do regular blood work. Eat healthy, exercise, and find a combination of diet, medication, and habits that keeps the remission. Exercise is important – there are millions of journals that will let you know that Crohn’s patients has less blood flow to their GI, and their GI has inflammation leading to leaky gut. That’s why exercise is important – it makes up for the less blood flow to the GI tract.
Also during flare ups – avoid caffeine and tomatoes and any high fiber food. I learned that it makes it hurts much much much more.
Hope this helps.
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